Showing posts with label terminal illness. Show all posts
Showing posts with label terminal illness. Show all posts

Monday, December 17, 2007

Saying Goodbye

Janae Beau White Eagle was an incredible woman. She died just four days short of her 66th birthday. Born on the day Japan attacked Pearl Harbor, Janae slipped out of this life quietly in the hours between one day and the next. No one was there with her. A nurse checked and Janae was there, and when she checked again my friend had gone.

Janae lived long enough to visit with her beautiful daughter and hold her precious grandbaby. Janae loved that baby deeply and dearly, even before he was born. She had time to be initiated into another level of her religion. She lived long enough to welcome death when it came.

Janae was a remarkable woman, self-made in many ways. She was an incredible artist and in recent years had earned her living as a professional quilter. Janae's quilting was incredible. The lucky quilters who have her stitches on top of their quilts own nothing less than a work of art.

At the end, we who loved Janae did our best to surround her with love, even if we couldn't be there all the time. Even though she seemed to be drifting, already halfway out of our world, I know she understood that we were there. I read from her holy book and sang a prayer for her that is important in her faith. We all told her we loved her.

Mostly we held her hand or stroked her hair or just sat beside the window in her room, watching the days grow shorter and darker.

And then she was gone.

Some of us gathered and toasted her memory with hot cider and cookies. Two or three three of us were hard about the work of emptying her house. We fulfilled the wishes of her will as best we could. And still had a house filled with things.

The sorting and boxing and labeling and such began before Janae died. It will be done for good Wednesday when Goodwill comes to take away the remaining boxes and bags. I don't think it will be sad. I have said my goodbyes. It hasn't been easy, spending hours at a time in her house, touching her things, listening for her laughter. But I have talked to her, I have sat in her house and cried until my eyes ached. I think now I can bear to let go of the last of her things.

Janae believed that we are all born over and over until we get it right. And that we share each lifetime with the same people, but in different positions. Maybe next time your husband will be your sister or you will be your aunt's mother. In many conversations, Janae and I came to agree that undoubtedly we had known each other in previous lives. We only shared this life for a year, but it felt like we had been friends forever.

I hope Janae was right. I told her that. During those last days I told her that, with her getting there sooner than me, she has to put the word in with the big Boss. No more of this stuff of finding my friend and then losing her so soon. This has been too hard to bear.

Next time, in the next lifetime that Janae and I get to share, we have to meet sooner.

Thursday, September 20, 2007

Poetry Time

Tonight I am exhausted.

I spent time last night and today helping my friend J dismantle her household. She is moving to a more comfortable place, and in the process is selling everything but the necessary nuts and bolts of her life.

We measured fabric and rolled and marked it: $3 a yard. She is only keeping the things needed to complete a few projects. J sat down and figured what she can hope to finish in the few months left to her life. Everything else goes, generating cash she desperately needs to continue living until she dies.

I'm tired to the bone. Aching in body and heart. We laughed all afternoon. That's her gift to me. She says it's my gift to her. We are both blessed.

So the post I had planned for today will wait for another day. Instead, I'm going to treat you to a small portion of a poem by Dylan Thomas. He is my favorite poet, and I love poetry.

This excerpt comes from "Poem on His Birthday", written in the summer of 1951. The poet was 35 that year. He died on November 9, 1953. I believe this piece of poetry is quite possibly perfect:


Yet, though I cry with tumbledown tongue,
Count my blessings aloud:

Four elements and five
Senses, and man a spirit in love
Tangling through this spun slime
To his nimbus bell coll kingdom come
And the lost, moonshine domes,
And the sea that hides his secret selves
Deep in its black, base bones,
Lulling of spheres in the seashell flesh,
And this last blessing most,

That the closer I move
To death, one man through his sundered hulks,
The louder the sun blooms
And the tusked, ramshackling sea exults;
And every wave of the way
And gale I tackle, the whole world then,
With more triumphant faith
That ever was since the world was said,
Spins its morning of praise;


Dylan Thomas understood that his life would not be long. At the young age of 35, he could see the end coming. Spending time with J makes the fragility of life and the certainty of death more vivid. The journey will be over. The story will end.

I hope for you, dear friends, that when your own story winds down and your journey is all but over, you will find, as the poet did, the sun blooming louder and the world filled with "triumphant faith."

May the Peace of God go With you.
Matriarch

Saturday, September 15, 2007

What Time is It?

I never have enough time.

As a result, I almost never finish anything.

I took up quilting a couple years ago because 'being chronic' seemed like a lousy hobby. I took up quilting because it gave me the perfect cover for my true love, which is buying fabric. My vision of heaven has nothing to do with streets of gold and everything to do with row upon row of gorgeous bolts of fabric -- all available for free, of course.

I'm great at buying fabric. My quilting, however, leaves a bit to be desired. I struggle to make points match. My squares are wonky and my seams sometimes look like the trajectory of a car drven by a drunk celebrity. And I'm slow. Once a month I go to quilty meetings where lots of women and one man get together to show off our work. Each month, the same women stand up and show their work, all so perfect, all so finished. Each month I go home and look at my projects, lined up along the shelves like neglected urchins. I stand there in my sewing room wanting to take up the scissors and thread and wale away until i have finished a quilt or wall hanging and reached the enchanted land of embellilshments. But usually I just go to bed.

That, dear reader, is why I have so little to show in the way of finished work: I sleep a lot. Fatigue is my constant adversary. My kind of chronic has no reserves. If I do too much and get too tired, bad things happen. You don't want to know the details, trust me. So I try to get plenty of sleep.

I have to sleep 9 hours at night, and tend more toward 10. And I take a nap every afternoon. Always an hour, sometimes two and if I've pushed a bit in the morning, I might be out for three. And, if I was foolish yesterday and spent time in the sun, walked around town with a visiting friend, drove too much, etc ... then today I'm going to pay. I will wake up late, be exhausted by the effort of eating breakfast and need a morning nap. I will wake up shortly before noon, be exhausted by the effort of eating lunch and go back to sleep. Before dinner I'll wake up long enough to load the dishwasher and figure out something for supper that requires absolutely no energy and then I sleep until my husband comes home from work. After supper, of course, I'm ready for an early bedtime.

You can see how that would make it hard to get much done.

My dear friend J recently stopped being chronic. She went to her doctor one day, expecting a change in chemotherapy, and came home with a referral to Hospice. Christmas may not come this year.

They say that those who are about to die find they are living much more vividly. They take chances and do things they've always put off.

Well, J isn't jumping out of airplanes or climbing mountains. Instead, she's selling her personal possessions so she will have enough money to eat when she can't work anymore. Yeah, it sucks the big one. Life is so unfair.

In addition to being my friend, J is a quilter. She actually has made a living quilting the quilts that other people put together. When I talked to her yesterday, she was trying to figure what she can do in the time she has left. Some projects she just has to finish: a velvet quilt for a friend who took her in at a tough time, a wall quilt for her daughter, a stuffed teddy bear and matching bunny rabbit for a grandchild she may never see. The rest of her 'stash' of fabric will be sold to quilters who are gambling they have enough time to use it.

They say people who know they are dying have more wisdom and insight into life's hard questions. So I complained to J about my lack of time, how I sleep too much and just don't have time to finish all the projects I have started. I asked her what to do, how to manage, what is the answer to my frustration? My friend shook her head, took a quick look at the stacks of fabric she will be selling in the coming weeks and gave me the full force of all her insight and wisdom.

'Work faster,' she said.

**********************

I realized today that at the end of my last post, instead of signing off 'Peace and Blessings' I had written 'Peach and Blessings.' It may have been a simple typo, or may have been some sort of associative slip caused by the sweet, juicy, bursting with flavor peach I was eating while I wrote. Either way, I sort of like the whole idea. After all, what could be more of a blessing than a perfect piece of summer fruit? On that note, I will leave you until next time with this benediction:

Peaches and Blessings and All Good Things!
Matriarch